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Has Anyone Seen Ads For The Visible Activity Tracker?
I looked at it for my daughter who has POTS & fibro but was thinking it might work for MPNs too?
As fatigue is the most frequent symptom in MPNs, managing fatigue helps with improving quality of life. An activity tracker could help, especially if you have a professional like an occupational… read more
Does Anybody Has Ringing In Ears With ET??
I have continuous ringinging in ear and my doc says it's nothing to do with MPN. But I think it is because of low blood flow in head and neck
What could be the possible reasons of this ringing in… read more
I Have Had Pain In Several Joints During 3 Months. Could It Be A Symptom Of MPN?
I have essential trombocytosis.
Thank you for this information.
Polycythemia: Memory Issues
Hi All,
I am a 62 y/o law student. Over the last nine months or so, ever since my polycythemia diagnosis, I have noticed trouble recognizing, remembering, and naming other law students on my campus. These are people I feel I should know. I wonder whether my blood-sludge is decreasing oxygen transport to my brain. I worry that this problem will get worse and affect my capacity for critical analytical thinking.
Online reading has not indicated polycythemia as a reason for such memory trouble… read more
Wellbutrin is prescribed for depression and smoking cessation, but it is also used off-label for ADD/ADHD. So I take a small amount to fight the brain fog. It is working! It also helps fight my… read more
Has Anyone Had Ringing/humming In The Ears? It’s Continuous And Has Been Going On For A Few Weeks?
Hi Edna,
Tinnitus in ET and PV is considered to be due to too many blood cells (platelets in ET and red blood cells in PV) in the blood vessels
"ET may also cause hearing problems, such as tinnitus… read more
Does Anyone Here Know If JAK2 Inhibitor Meds Work If You Are JAK2 Negative? Just Curious...I'll Ask My Doc Next Visit As Well.
May all be well!
Does Mpn Cause Peripheral Neuropathy?
I have had peripheral neuropathy in my feet and now in my hands and forearms.
It is a important to distinguish the different types of numbness-tingling that can occur in relation to MPNs and their treatment.
MPN related paresthesia is a known phenomenon. While not… read more
MDS A MPN?
My father had Mylodysplastic Syndrome (MDS). Is this considered a MPN?He died from leukemia in the end. He was diagnosed 10 months prior.
I and several other people on here have MDS and MPN and JAK2 mutation as well as other mutations. Leukemia is what we’ve been trying to avoid with treatment. Some have less or more of a propensity to… read more
Is The Mediterranean Diet Good If You Have Myelofibrosis??
Your question is very good and I have just learned about this issue. Here is your reference:
https://www.mympnteam.com/resources/diet-and-nu...
https://news.cancerconnect.com/myeloproliferati...
Anyone With Familial MPN? My 27 Y/o Was Just Diagnosed With ET Nearly One Year After Me, 52 Y/o.
Here's another source to consider. It's a 2017 scholarly article that discusses familial cases of MPNs (genetic predisposition. The authors say this: “In our experience, about 7% to 8% of patients… read more
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