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Has Anyone Seen Ads For The Visible Activity Tracker?
I looked at it for my daughter who has POTS & fibro but was thinking it might work for MPNs too?
As fatigue is the most frequent symptom in MPNs, managing fatigue helps with improving quality of life. An activity tracker could help, especially if you have a professional like an occupational… read more
I Have Had Pain In Several Joints During 3 Months. Could It Be A Symptom Of MPN?
I have essential trombocytosis.
Thank you for this information.
Does Anybody Has Ringing In Ears With ET??
I have continuous ringinging in ear and my doc says it's nothing to do with MPN. But I think it is because of low blood flow in head and neck
What could be the possible reasons of this ringing in… read more
Is The Mediterranean Diet Good If You Have Myelofibrosis??
Your question is very good and I have just learned about this issue. Here is your reference:
https://www.mympnteam.com/resources/diet-and-nu...
https://news.cancerconnect.com/myeloproliferati...
Does Anyone Here Know If JAK2 Inhibitor Meds Work If You Are JAK2 Negative? Just Curious...I'll Ask My Doc Next Visit As Well.
May all be well!
MDS A MPN?
My father had Mylodysplastic Syndrome (MDS). Is this considered a MPN?He died from leukemia in the end. He was diagnosed 10 months prior.
I and several other people on here have MDS and MPN and JAK2 mutation as well as other mutations. Leukemia is what we’ve been trying to avoid with treatment. Some have less or more of a propensity to… read more
Does Anyone Know If There's A Link Between HLA B-27 And JAK2? I've Tested Positive For Both.
I have ET, arthritis and fibromyalgia.
Thanks a lot! This is very interesting.
Have Any Of You Been To This MPN Advocacy Conference Before?
https://lp.constantcontactpages.com/ev/reg/yx2p...
Might be in the US end-Sept and was thinking of going. Curious if any of you had been to this one before (or other conferences that MPN Advocacy have organised) and what you thought.
I haven’t been to any yet. I would like to go to one in theory, but I have feeling I won’t…
Anyone Know If VitD K2 Mct Oil Is Safe For Myeloproliferative Disorder/ Polycythemia/jak2 Marker? It Was Recommended To Me Yesterday.
Thank you so much,!
I Asked My Dr If My ET Could Be Myelofibrosis? Dr Said "since My WBC Is Normal And I Have No Anemia, It Is Unlikely. Do I Do The BMB Or Not?
Dear Renee,
The 2016 WHO classification and diagnostic criteria for myeloproliferative neoplasms always includes a bone marrow biopsy to distinguish between ET/PV and PMF
https://www.ncbi.nlm.nih.g… read more
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